Published Date: February 01, 2024

Summary: In this brief, authors look at what is meant by demographic disability data. They discuss some common myths and stereotypes that likely influence why government and health entities tend to overlook a need to collect demographic disability data and explain why demographic disability data is needed, how it differs from medical or insurance information, and why it is important for proper medical and insurance assessments. They also look at current examples of providers, health systems, and states that are working to collect demographic disability data. And finally, they provide some recommendations for how relevant entities could begin to collect this information, which is critical for ensuring that people with disabilities receive equally effective health care.

The California Health Interview Survey is included in a chart of sources for demographic disability data that compares some of those sources' key characteristics. 

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